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Jogging for Jonah

Posted on 4/30/2012 by Rebecca Woodcock

Jogging for Jonah

Join the community at Tanglewood Park for the Jogging for Jonah 5K that is raising awareness and money for Dystrophic Epidermolysis Bullosa Research Association.

The event is taking place at Tanglewood’s Shelter 2 beginning at 8 am, with the 5K starting at 8:30 am and the Fun Run at 9 am.

Jonah Williams was born on February 27, 2009, and was immediately diagnosed with Epidermolysis Bullosa, a devastating skin disorder that is often fatal. Children who are affected with EB lack a protein that holds their skin to their body. The skin blisters or sheers off with the slightest friction or least amount of trauma - elastic and tags, seams, scratching an itch, rubbing your eyes, wearing shoes etc, all can cause debilitating blisters and scarring. Not only does EB affect the skin, it can affect internal organs, one's ability to absorb and maintain good nutrition, growth, and almost every other bodily function.

All proceeds from Jogging for Jonah will go to the Dystrophic Epidermolysis Bullosa Research Association to help fund research for a cure, so that Jonah, and thousands of children like him, will someday know a life without blisters and constant pain.

Entry forms and registration fees must be submitted by May 1, 2012.

For more information and to register or donate, please visit http://debra.org/joggingforjonah


General Park Information

  • Pets must be under control of their owner and kept on a leash no longer than six feet at all times. All pets must have current inoculations for rabies. Pets must be kept and never left unattended. Pet owners are responsible for their pets using the designated waste area and cleaning up after their pets at the designated area.
  • Golf, Horse Stables, Hiking Trails and Accommodations are available year-around.
  • Gardens are open year-around. Blooming seasons vary.
  • Tennis activities are available from April to November.
  • Water activities can be enjoyed from Memorial Day to Labor Day.
  • Entrance Fee:
    • $8.00 - Passenger Vans and Buses
    • $2.00 - All other vehicles
    Annual passes can be purchased at the Welcome Center for $50.00 for passenger vans and buses and $25.00 for all other vehicles. Entrance fees and annual passes do not include admission to special events.